Tuesday, 2 November 2009 - Day +85

Melbourne Cup Day today - so different from last year. The morning was busy with Drew having more blood taken, an ECG as he had a pain in his chest yesterday afternoon and a CT scan, just to make sure his chest is totally clear. All were good, although one of his kidney levels is high due to the cyclosporin. Drew's doctor in Sydney said to put his steroids back up to 50mg per day, which means he will be incredibly hungry, and they will be reduced slower. The side affects of the steroids include high blood pressure and blood sugars and thinning of the bones to name a few, but unfortunately it is necessary to keep the GVHD at bay. It is definitely a roller coaster ride. I have met another Mum whose son is in here at the moment, he finished his 2 years of treatment in September and relapsed 3 weeks later and they are facing it all over again - you feel so sad for them and at the same time hope that we won't be in the same situation.