Wednesday, 30 September 2009 - Day +51
What could today bring - well at 10.30am Drew was still asleep and I had to wake him up, firstly for him to take his immunosuppressant drug which needs to be taken at the same time morning and night and secondly so I could inject the anti clotting drug. So the day didn't start overly well. The Drs needed to take blood 4-6 hours after the anti clotting drug had been given, by a different cannula. Drew was also supposed to be having a lumbar puncture, a bone marrow aspirant and an ng tube today to see if any infection can be found there, but these were postponed to next week due to the blood clot. A gastroenterologist came to see Drew as well, he thinks his tummy is OK but he is going to have an endoscopy and colonoscopy tomorrow. As Drew needed a different needle to get blood today he didn't think he had enough bravery to do it alone and wanted gas, which meant he couldn't eat, and this wasn't due to happen until 4.00pm, in between times the endoscopy had been decided upon which then meant he couldn't eat until tomorrow afternoon. He survived on 10 grapes today and was starving. Drew did go well under the gas today though and we didn't need to hold him down. One good thing about having the procedures tomorrow, meant I didn't have to inject the anti clotting medication again until Friday or Saturday, lets hope the clot just stays where it is or has already gone, he'll have a another scan to check that tomorrow too - so until then....
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1 comment:
Oh my god Drew you would have to be the bravest and strongest little boy I know.Everyone is so proud of you.
Donny big hugs your way as you need it,just watching it all happening must be so draining.
Sending all our love and every bit of strengh your way.
love you both heaps.
The Aichingers
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