Wednesday, 8 April 2008 - Change of Plans

Well today was one of the day's. We arrived at John Hunter Hospital at 7.15am for Drew's BMA, we arrived right behind one of the other kids who is also being treated for ALL (Acute Lymphoblastic Leukaemia). This child went for her procedure, the same as Drew's at 10.00am. Drew was still on the ward at 1.30pm, waiting and starving. At 2.00pm the wards woman came to collect him unannounced (they normally ring to let the nurses know their coming), we quickly packed up the bed ready to go, when she got a phone call and the OR said they didn't want him till 3.00pm - off she went. I thought I'd get Drew a Starlight machine for the hour to pass the time quicker and take his mind off his hunger, no sooner had I finished setting it up, when the wards woman was back, she had got back up there and they said sorry, our mistake we do want him now - so finally up we went. Meanwhile, the child we had came in at the same time was going home. The procedure was quick and Drew was back on the ward by 3.30pm. Around 4.00pm, one of the Doctors came in to break the news that what we'd been told first about treatment this week was correct, it wasn't a treatment free week and Drew would be staying in, going back to theatre tomorrow for a lumbar puncture, followed by the methatrexate chemotherapy and the earliest we would be home would be Saturday night. I just felt like crying and Drew did too. I left Drew with his Starlight machine and went back home for clothes and brought Drew some McDonalds for dinner. To top the day right off the Mariners lost 5 - 0 - it can only get better.