Wednesday 25 March - Bad Day in the Office

Well the day started OK and then went down hill before coming back up at the end. Drew seemed to hit the wall mid morning, this sadness just crept over him and there was no shaking it. His port had to be deaccessed because it had been in for a week. This set off one of the biggest traumas, since he was diagnosed. Getting the tape off, particularly after a week is painful and there is a bit of discomfort when the clip of the port is removed, but Drew worked himself right up, there was no comforting, co-operating, deep breathing or having a bar of it. Finally Nurse Jade and I forced the issue and it was over in 2 minutes or less - it was pretty upsetting for all concerned. Once Drew would let me touch him again, we had a cry together, not long after Dr Frank came in and you can tell when the news isn't good. None of the boys, nor Peter or I are a match for Drew's bone marrow transplant, we will now go to our siblings to see if they have the necessary tissue type to then test their children. Drew cheered as the day went on. Sean came in and played some music with him and then he watched Milo and Otis which he loves. His brothers arrived and he was positively jumping and a visit from Miss Cinitis topped off the day.